Wednesday, May 27, 2009

ONE

I've been a bad mom and bad blogger and haven't had five minutes (more like 30 minutes), to write Lily's 1 year post...seriously, I have been caught up in the Jon & Kate Plus 8 drama and had to go buy the book...exactly what they wanted!

Anyways, better late than never, right?

So Lily is ONE.....

...and what a difference ONE year makes...


...and with the passing of ONE year, seemed to come lots of good news...


Lily is weighing 18 pounds 2 ounces and is 28.5 inches long, that puts her at the 10th percentile for weight, 30th percentile for length and of course, her head is in the 85th percentile...I did ask if anyone ever goes off the charts because it seems Lily's head size might. It does happen :) I believe these percentiles were calculated based on her actual age of 12 months.

Because of this, we were given the go-ahead to take Lily off of Neosure slowly and get her on to whole milk - yay! She is eating "people" food (I don't know why they call it that, she's always been a person). She is still on Prilosec and Axid for reflux and her dose has just been increased because of some recent vomiting and crying when she burped.

She is still crawling, climbing stairs and pushing her stroller around, but is still a little scared to walk without assistance.

If you didn't see in the post below, Lily was discharged from Occupational Therapy last week and is coming in at the 50th percentile for her fine motor skills based on her actual age of 12 months - go Lily!

Lily is a busy little bee and has been to the zoo already 5 times this year
(thanks to mom for the zoo pass), and we recently took her to the Rainforest Cafe in Gurnee Mills - she loved it!




She goes to M&M gym a lot with Mason and Auntie Billie


We also went to Chocolate Fest in Burlington last weekend,
not really all it's cracked up to be, but we still had fun.

You! Need to try chocolate!




And Lily celebrated her second Memorial Day, this time outside...instead of in an isolette.

She is saying dada, mama, hi, eye and cat and tries to say dog.
She also meows and tries to bark.

Lily had an awesome birthday party and I just want to thank everyone again for all of the help with the food and cleaning up and also for all of the wonderful presents Lily received, she is one lucky girl!

I feel like I have been holding my breath for a whole year, and can finally exhale -
everything is alright!

Sidenote: Mustache May is Back! against my wishes

Since having Lily I have learned that some things just aren't worth fighting about anymore, Mustache May is one of them...you may or may not know that Chris grew a mustache last May in something he called "Mustache May", it's something the guys at the Police Department did.

So almost every NICU picture of him and his beautiful newborn daughter, he has a mustache!

so sleezy and Lily will no doubt give him a hard time about it when she is older

He doesn't normally ever have a mustache. And last year I really didn't have anymore "fight" left in me after everything that happened...well, this May he decided to do it again, at least this time he waited until after Lily's birthday party to grow it out - ugh!
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Wednesday, May 20, 2009

Occupational Therapy Graduate

Lily was re-assessed yesterday by her occupational therapist to see where she is developmentally. Her occupational therapist has been working with her on her fine motor skills, specifically with her thumbs.

Lily is coming in at the 50th percentile based on her actual age of 12 months, which is awesome! She would be off the charts based on her adjusted age of 10 months.

So, that was our last appointment for three months, and then they will check-in on her again, to make sure she is still on track. This is wonderful news!

We have a re-assessment with her physical therapist on June 9th. She works with Lily on her gross motor skills…her stiff shoulders, bringing her hands to midline, sitting, crawling, transitions, walking. Her therapist and I have no doubt that she will score at or above her actual age, she is doing wonderfully with crawling and getting from laying to sitting to standing back to sitting and laying again and you've seen how well she climbs stairs (post below this one) and is clapping and her shoulders are relaxed and her torticollis on her left side is almost resolved. She is also very close to walking on her own!

We are so proud of Lily and all the progress that she has made this year! (Of course I am so proud that I started crying when we left therapy).

Here are some pics of her with her gloves on (to keep her thumbs out), she wears these about an hour a day to play (when I remember to put them on - bad mom!)


And of her in her penguin pants, or as Chris likes to call them, her football player pants…these help keep her legs in so she can crawl better and it makes it tougher for her to transition, making her have to use a lot of her core.


My mom has been telling me she is a "super preemie" since she was born...I am starting to believe it! Best Blogger Tips

Sunday, May 17, 2009

She Climbs, She Climbs!

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Lily's Tea Party

What a day....we spent weeks preparing for her big birthday party, and just like this first year has gone...the party flew by!

The weather was kind of cold and rainy and the party was outside (luckily we had a tent and heater), thank you all for toughing it out on Lily's big day, especially the little ones!

Some of the highlights of the day included: Lily falling asleep in the middle of her party, a mad-dash to save the presents when it starting raining and of course, watching Lily eat her first birthday cake.

Thank you for all the presents! Lily will be well-dressed this summer and might actually be reading, thanks to Aunt Angie for "Your Baby Can Read", we already are seeing Lily clap and wave when the words come on the tv, it's amazing!

Thank you everyone for coming and spending the day with us, we really appreciate it. And it was nice to finally have people over, it seems like we kept her in a bubble for a year!

Miss Lily Turns ONE!

Lily's First Birthday Cake
(pic from above)
Party favors are supposed to be tea bags

Family pic with cake





When it was time to eat cake...Lily decided she needed a nap...so we waited

Lily's friends under one...Kyle, Baby Lopez (still in utero) and Ashlyn...
she'll have lots of birthdays to attend this year

Lily's teapot birthday cake (made by Grandma)

I'm ONE!

Mason helps Lily

Lily says "Let them eat cake!"

This messiness is too much for Mason, he must clean Lily

Lily and her presents


Lily & Ashlyn

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Wednesday, May 13, 2009

Kayleigh

You may have noticed the link to the right “Pray for Kayleigh”…I have been following this blog since she was born. Kayleigh was born June 23rd 12 weeks early due to severe IUGR and preeclampsia, she was a mere 1 pound 1 ounce when she was born.

Her parents have shown incredible strength through this journey. They have made so many sacrifices. They were real estate agents and when the market took a turn they had to decide whether to pay their mortgage or health insurance, which they desperately needed for Kayleigh.

She has been in the NICU since she was born (11 months) and after 7 major surgeries and 248 procedures, they were getting close to finally bringing their baby home. She had fought all odds and was the smallest baby to ever undergo open heart surgery. After a surgery a couple weeks ago, it was determined that her brain had lost oxygen during the surgery and she was brain dead.

There only wish was to take her home and let her see her nursery and be home with her brother and sister, to take her on a walk and let her feel the breeze on her face.

Sadly, Kayleigh passed in the NICU on Monday evening. The post titled Goodbye Sweetheart...For Now, is beautifully written by her dad.

http://kayleighannefreeman.blogspot.com/

Please wrap your arms around this family and pray for them, they have been through so much.

Kayleigh Anne Freeman
June 23, 2008-May 11, 2009 Best Blogger Tips

Sunday, May 10, 2009

Happy Birthday Lily


My little Lily is 1 today.


I can't believe a year has gone by, it went by in a blink of an eye. Lily was and still is our miracle baby.


It seems like I was always excited for the next step in Lily's development and then once she would get there, I would miss the last phase we were in.

I feel like I have spent the last year worrying about all of the things that could be wrong with her, but I feel such pride thinking of how well she is doing. One thing is for sure....we have come a long way in 1 year.

We've made it through the ups and downs of the NICU, learning how to nurse and bottle feed a preemie, our first diaper changes and "poop up the back", our first car ride, watching the monitor all night long to make sure she was breathing, not sleeping through the night to sleeping through the night to not sleeping through the night again, sleeping in the carseat, then the bassinet and finally the crib, projectile vomit everywhere, reflux and reflux medications, clipping those precious little nails, ear infections, colds, RSV, bronchilolits, teething (2 teeth so far), a NICU follow-up, physical therapy, occupational therapy, every color and texture poop you can imagine, swim lessons, baby babbles, first words, first holidays, first steps, first foods, clapping, waving bye-bye, lots of laughs and some cries, lots of worries and prayers - we made it.

Happy Mother's Day everyone!

More birthday party pics coming soon.
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